Forgotten Patients: Family Caregivers in Psychiatric Care Transitions and Readmission Prevention
Abstract
Introduction Psychiatric readmission remains a major challenge in mental health care, particularly in resource-limited settings where continuity of care following hospital discharge is often fragmented.
Aim This study explored the role of discharge planning in preventing psychiatric readmission from the perspectives of patients, family caregivers, psychiatric hospital staff, and primary healthcare nurses in East Nusa Tenggara, Indonesia.
Result The findings showed that fragmented discharge planning limited continuity of care after psychiatric discharge and increased the responsibilities of family caregivers in coordinating post-discharge care. Four interrelated themes emerged: (1) family burden extending beyond hospital discharge; (2) emotional exhaustion and psychological distress among family caregivers; (3) fragmented discharge planning and weak continuity of care following psychiatric discharge; and (4) living with limited resources.
Conclusion These findings suggest that psychiatric readmission is influenced not only by patient-related factors but also by fragmented transitions of care that unintentionally transfer greater responsibility for continuity of care to family caregivers.
Downloads
References
Asgharzadeh, A., Janmohammadi, S., Pourabbas, M., Vahidi, M., & Rashti, B. (2025). The role of a transitional care program in supporting family caregivers to prevent relapse in severe mental illness: a qualitative study from Iran. BMC Nursing, 24(1). https://doi.org/10.1186/s12912-025-04077-7
Batool, I., Malik, G., & Manzoor, I. (2021). Demographic Differences on Caregiver Burden, Psychological Distress and Hopelessness Among Caregivers of Psychiatric Patients. Khyber Medical University Journal, 13(4), 227–231. https://doi.org/10.35845/kmuj.2021.20469
Braun, V., & Clarke, V. (2021). Thematic Analysis: A Practical Guide. Sage.
Chadda, R. K., Sood, M., Chawla, N., & Sen, M. S. (2021). Family-Led Care for People Living with Severe and Enduring Mental Illness (SEMIs) in the Low-Resource Settings. In Innovations in Global Mental Health: Volume 1-2 (Vol. 2, pp. 1363–1378). https://doi.org/10.1007/978-3-030-57296-9_103
Hegde, A., Chakrabarti, S., & Grover, S. (2019). Caregiver distress in schizophrenia and mood disorders: the role of illness-related stressors and caregiver-related factors. Nordic Journal of Psychiatry, 73(1), 64–72. https://doi.org/10.1080/08039488.2018.1561945
Hovland, O. J., Kininga, N. N., & Johannessen, B. (2025). Caregivers’ understanding of mental illness and their experience in caring for mentally ill individuals: A qualitative study among caregivers in Tanzania. International Journal of Africa Nursing Sciences, 22. https://doi.org/10.1016/j.ijans.2025.100850
Iversen, H. W., Riley, H., & Lorem, G. F. (2026). Paradoxes in Mental Healthcare: Exploring Service Gaps in Treatment and Care for Patients With Extensive Hospitalization Experience. Qualitative Health Research, 36(6), 607–618. https://doi.org/10.1177/10497323241309259
Kaur, A., Kallakuri, S., Kohrt, B. A., Heim, E., Gronholm, P. C., Thornicroft, G., & Maulik, P. K. (2021). Systematic review of interventions to reduce mental health stigma in India. Asian Journal of Psychiatry, 55. https://doi.org/10.1016/j.ajp.2020.102466
Mbadugha, C. J., Ogbonnaya, N. P., Iheanacho, P. N., Omotola, N. J., Ogbonna, P. N., & Anetekhai, C. J. (2023). Exploring perceived impact of caregiving and coping strategies adopted by family caregivers of people with schizophrenia: a qualitative study in Enugu, South East Nigeria. Qualitative Research Journal, 23(3), 338–353. https://doi.org/10.1108/QRJ-06-2022-0082
Ono, F., & Okamura, M. (2026). Clinical, social, and economic burdens of schizophrenia in Japan: a targeted literature review. Schizophrenia, 12(1). https://doi.org/10.1038/s41537-025-00716-9
Petkari, E., Kaselionyte, J., Altun, S., & Giacco, D. (2021). Involvement of informal carers in discharge planning and transition between hospital and community mental health care: A systematic review. Journal of Psychiatric and Mental Health Nursing, 28(4), 521–530. https://doi.org/10.1111/jpm.12701
Setu, Y. T., Suhardin, S., Bete, I., Suwetty, A. M., Nennogasu, M. F., & Nubatonis, A. Y. (2026). Fragmentasi Layanan dan Determinan Sosial: Analisis Kualitatif Kegagalan Discharge Planning dan Rekomendasi Model Kolaboratif Lintas Sektor (SEHATI). MAHESA: Malahayati Health Student Journal, 6(7), 310–327. https://doi.org/https://doi.org/10.33024/mahesa.v6i7.23910
Shiraishi, N., & Reilly, J. (2019). Positive and negative impacts of schizophrenia on family caregivers: a systematic review and qualitative meta-summary. Social Psychiatry and Psychiatric Epidemiology, 54(3), 277–290. https://doi.org/10.1007/s00127-018-1617-8
Verity, F., Turiho, A., Mutamba, B. B., & Cappo, D. (2021). Family care for persons with severe mental illness: experiences and perspectives of caregivers in Uganda. International Journal of Mental Health Systems, 15(1). https://doi.org/10.1186/s13033-021-00470-2
Copyright (c) 2026 Saverinus Suhardin, Yohana Teodosia Setu, Imakulata Bete, Camelia Bakker, Joli Riyana Nubatonis, Kurnia Bend. Yunita Pellondou

This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.
Journal of Health and Behavioral Science (JHBS) is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License. You are free to copy, transform, or redistribute articles for any lawful purpose in any medium, provided you give appropriate credit to the original author(s) and JHBS, link to the license, indicate if changes were made, and redistribute any derivative work under the same license. Copyright on articles is held by the authors. By submitting to JHBS, authors grant any third party the right to use their article to the extent provided by the Creative Commons Attribution-ShareAlike 4.0 International License.
Saverinus Suhardin(1*)






